‘Other households are bringing it in from Holland’: The mum fighting for her sons to get medicinal cannabis on the NHS

[ad_1]

A mum who is fighting for her disabled sons to be provided medicinal cannabis on the NHS has told how other parents of sick children are smuggling it in from The Netherlands.

Two of Angela Norton’s 3 sons have a uncommon type of epilepsy named West syndrome, which can lead to them to have numerous seizures each and every single day.

Their seizures can be so extreme that Angela, who lives in Macclesfield, typically goes to bed not being aware of if her boys will nonetheless be there in the morning.

Each Reims, 19, and Cayman, 12, have been prescribed standard drugs for numerous years, but practically nothing has brought their seizures beneath handle.

But when Cayman’s well being deteriorated final year, Angela convinced medics to give him a medicinal cannabis drug named Epidiolex,  which includes the cannabis ingredient CBD.

It initially brought his seizures beneath handle, prior to it at some point stopped functioning.

Now Angela is desperate for Manchester University NHS Foundation Trust to agree to prescribe her sons complete-plant primarily based medicinal cannabis to aid with their seizures. 

Her ongoing battle to receive the drug legally for her sons will be featured on the BBC’s Inside Out North West on Monday.



Angela Norton is battling for her epileptic sons Reims, 19, and Cayman, 12, to be prescribed medicinal cannabis on the NHS

 

Angela told the programme: “Reims was 4 weeks old when we 1st noticed his seizures.

“He ended up on a life assistance machine.

“From about 4 months on the seizures had been important and at six months old he was diagnosed with West syndrome, which is a uncommon type of epilepsy.

“When we had Reims he was genetically tested and of course practically nothing came back and we had been told it was almost certainly just a 1 off mutation, so we had Harry who was fine.

“We had no purpose to think it was going to occur once more.”

Study much more of today’s stories right here

Angela had a third son, Cayman, and inside months she suspected there was anything incorrect.

“I knew anything wasn’t ideal from a extremely early age. I was told I was paranoid and of course in the finish the seizures had been confirmed.”

A alter in the law final year gave parents like Angela hope when the Government amended the Misuse of Drugs Act to let the use of medicinal cannabis for certain well being circumstances, like intractable epilepsy.



Angela’s battle for medicinal cannabis for her sons is set to be featured on BBC Inside Out

“The proof that we have noticed in other kids that…

[ad_2]

Latest posts